West Ham Online

"Been through bad time lately with suffering with this. Dark thoughts as well. I know some posters on here suffer with this. Anyone come through the other side of this shit?

"A number of posters have been yellow carded and told to stay off this thread unless they have anything constructive to add.This is a thread that has been very useful to so many, for any other posters with scores to settle, argue on another thread. This thread is sacrosant.Thank you"

"Lads, long story short. Always been an upbeat family Chronic, illness getting worse, work, family usual suspects Although West Ham helped yesterday. All been a bit much, Doc has put me on Setrailne. Just wondered what to expect..only just started. Never done medication before. Anyway all the best lads."

"Collyrob, putting this on here as I can’t seem to reply to mail and this is the safest thread to do so…..but thanks for remembering and putting things straight….proper West Ham that is…..cheers."

Tomshardware yes mate It's a very good piece from Mark that highlights the need to talk and as you say to show that people aren't alone

charleyfarley 6:59 Tue Mar 21 Thanks for sharing and posting this. The more people realise that they aren't alone in this then it helps.

charleyfarley 6:59 Tue Mar 21 Thanks for sharing and posting this. The more people realise that they aren't alone in this then it helps.

"Pents, I should have put single quotes around annonys words... ....You grammar fanny x"

MPI - u fanny x

"I don't want to come across as a complete fanny and thought whether to post, but to be honest I thought it might resonate with someone who maybe has taken or taking steroids or other medications The best things about WHO. 1) Anyone can be a complete fanny and anyone can call them out on it. 2)There is one place on WHO where we can drop the online personas and be honest, doubtful, fearful, angry, charitable and tearful and the opposite happens. Keep us informed, Annony mate lean in if you need to."

Definitely not boring Annony. Look forward to hearing updates..Best of luck

"I forgot to mention I had a ,Bronchoscopy also before being referred again. WH67, thank you too and all the best!"

"MPI, thanks for asking, your a good egg mate. Yes I am fortunate having support from family and a few friends. I don't want to come across as a complete fanny and thought whether to post, but to be honest I thought it might resonate with someone who maybe has taken or taking steroids or other medications that have caused them mental side effects or bring it to the attention of anyone who may have not considered it being the cause. My situation is fairly irrelevant, it is a respiratory problem developed slowly before Covid, 2 x antibiotics from gp did nothing, told it can't be bacterial sent me away with steriod inhaler saying it was Asthma related. Covid shutdowns came it got worse couldn't get a gp appointment only phone avoided hospital as probably wouldn't be here now. After Covid subsided insisted to be referred to hospital, 1 year later after xrays, pft's,bloods,ct scans, they said I had emphysema or asbestosis, but my pft's didn't align with their diagnosis and I questioned it. They repeated all tests again with same results. They referred me to another respiratory hospital and the doctor diagnosed me with Pumonary Fibrosis and brought me in quickly for 3 days IV steriod treatment discharged now on 2+ months high dose steriods. No major side effects, but only 2 days in. Sorry to bore with details, this is my last post on the subject. I will give an update here after next seen doctor in June. Love to all my West Ham family xxx"

"Anony Good luck best wishes mate, Direct question so forgive do you have a support network in friends and family?"

Good luck Annoy. Google conflicts with the different meds they give you. I had a google myself and side effects last a few days to weeks

Thanks everyone for your good wishes and best wishes to all suffering here.

"Annony 12:44 Sun Mar 26 Best of luck. You may - probably will - find that they highlight potential side-effects to legally cover their own arse. I suspect that if many people actually worked through the possible side effects from most everyday drugs, even over-the-counter flavour, they'd simply avoid them. You seem to be in command of most, if not all of the information important to you so you can balance the probabilities against the possibilities, so back to the beginning of my post and...best of luck."

Best of luck Anonny

"I wish you all the best Annony, be strong , keep posting on here, plenty here for support ."

I think they adopt a wait and see approach then treat any side effects.

"Pentonville good question, only found out last week so not sure? They arranged it quick as they said I have massive inflammation. I don't think they give you anything. Only thing been told I will have to change diet cut down on carbs and sugar due to diabetes and weight gain. They work on the premise to go ahead with treatment if the potential gain outweighs the potential side effects. There giving me Methylprednisolone1,000 mg intravenous solution over 3 days then 40mg Prednisolone tablets tapered reviewed after 2 months."

"Do they give u stuff to balance out the side effects,?"

"Going in hospital Monday for a few days for high dose 1000mg IV corticosteroid treatment, then 2 months 60% chance of working. Apprehensive about the 130 possible side effects, Dr says I will die from current lung disease as only 30% Oxygen so have no choice but to take, common side effects include anxiety, depression also hallucinations, schizophrenia and suicidal thoughts some possible long term. Some proper horror stories on Reddit."

"Hi Mark, No doubt we have posted together in the past, good honest share, the part about working on mental health not being a project but rather a lifetime undertaking was a really useful call out. 55 and playing video games? Good for you, son, I personally cannot stand them but that's sort of the point: The older we get, the more we realise that you do what you need/want to do not what others think you should. Stay on it mate, all the best."

"This is from Mark who used to post on here, who wanted to share his experience with others in the hope that it may help. So pleased for him that he has moved forward with this, but as Mark as mentioned to me he is settled but knows deep down that things can turn to shit in a heartbeat so is more than realistic about his condition. Some useful advice from him that we hope may help others having difficulties Sorry to drop this on you mate as you probably aint got a clue who I am but I was a not so active member on who for a number of years but gave up posting about 7 or 8 years ago when I slowly descended into a complete mental breakdown,literally over the course of 2 to 3 months I fell apart mentally and emotionally it got to a point where I would find myself in tears for no reason in public with absolutely no control over it,imagine sitting in peckham job centre signing on in floods of tears and the guy signing you on is the person who tells you that you need to seek help, I honestly had no idea just how fucked I was until I tried to O/D on two occasions.Thankfully the second O/D was bad enough that I ended up in hospital and that’s where my long journey with various psychiatrists began and I really began to realise just how messed up i’d been for many years prior to my breakdown. Wow this feels long winded but I feel like sharing my experience with someone in the hope that it helps anyone of my west ham brothers who may be suffering some of the things I suffer from so I guess you’ll be my proxy if that’s ok as i’m not really up for rejoining Who just to have some idiot making fucked up comments about something they don’t understand and I end up losing it and doing something stupid. Ok i’ll try and keep this as short as possible as when you’ve been under different shrinks for 7 years you tend to have a long story so i’ll keep it brief. To begin with the first consultant psychiatrist I saw thought I was bi-polar but that wasn’t the case once he got some of my life story and over time I was diagnosed with a long list of disorders by various other psychiatrists,we’re talking about severe anxiety,depression,ptsd,mixed personality disorder,bouts of extreme psychosis to name but a few and to cap it all I was also diagnosed with adhd at almost 50 years old.I had numerous ECT sessions which are in no way as bad as people think but they only have a short term benefit and then your back to square one again so I ended up trying pretty much every anti psychotic and anti depressant on the market as well as mood stabilizers and a few other drugs for good measure just to find a balance where I could semi function thankfully over time i’ve half learned to cope with it all but something the psychiatrists never tell you for some reason is you’ll never be cured,this is something you have to live with for the rest of your life and i’d have trouble explaining that to someone who’s just started having psychiatric problems as I feel it would crush them knowing you just have to learn to live with it and try not to let it grind you down ,the shrinks always hit you with the “light at the end of the tunnel” bullshit and that’s just not true for some sadly,so I guess the best advice I could give to anyone who’s suffering on WHO is don’t let it rule your life and embrace it speaking from experience if you let it control you like I did for a few years you will end up desperate to end the suffering and end up being sectioned for your own safety which is not a good situation to be in,psych wards are not enjoyable places,they make prison look like a holiday camp. Ok I think i’ve rambled enough without going into great detail so in closing i’d like to just try and give some advice to those who are suffering,don’t make the same mistake I made by not seeking out help when I was clearly ill,don’t look at it as a stigma be open about it,talk to friends,family because sometimes just getting it off your chest can give you some relief and most important,if you feel that lifes not worth living and you contemplate doing something drastic contact your local psych crisis team and they will help you in any way they can,you may end up on a psych ward for a day or two but you’ll be alive when you get out and lastly as dumb as it sounds try and find a hobby that takes your mind into a different place,personally I got myself a ps5 and just spend hours playing games keep my mind away from any negative thoughts,yep I know 55 and playing video games but that’s my crutch and it works for me most of the time and when it doesn’t then you just have to tell yourself that you’ll be back to “normal” in a few days. Thanks for listening mate and even if one line of what i’ve written helps someone then that’s good enough for me. All the best brother"

Thanks ted it was Tuesday just gone. My PIP phone assessment done was done by a paramedic so not too fussed with the line up I have behind me

Is that next Tuesday 67 ? If so everything crossed for you.